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A lifetime of AIDS
by Maryn Olson

 I have never known a world without AIDS.

On June 5, 1981, the U.S. Centers for Disease Control and Prevention released the first official report of what was later named AIDS. I was not yet a year old.

I was in preschool when researchers in France and the United States isolated HIV as the cause of AIDS; it was 1984.

Only a year later, in 1985, at least one AIDS case had been reported in every region of the world.

It wasn't much longer —-1987— until the U.S. government added HIV to the list of “dangerous contagious diseases” that would bar someone from immigrating or even visiting the U.S. And this was the same year that AZT, the first effective drug for the treatment of AIDS, was approved by the Food and Drug Administration.

I am part of the first AIDS generation. For us, a red ribbon has always symbolized AIDS awareness, and universal precautions are second nature.

But we are the ones who are dying.

Today, young people between the ages of 15 and 24 account for nearly half of new adult HIV infections in the world. Worldwide, most of the young people living with HIV/AIDS are female (62 percent). In sub-Saharan Africa, girls and young women make up 76 percent of the young people with HIV/AIDS, according the Joint United Nations Program on HIV/AIDS (UNAIDS).

The Faces of AIDS
Supported by the ELCA’s Global Mission, I work with the Evangelical Lutheran Church in Namibia AIDS Action program. With the help of USAID (United States Agency for International Development) funding, our program offers community education, outreach and training, and works to support individuals and families infected with or affected by HIV/AIDS. One family we visited recently is headed by a widow who supports 22 people, including her 10 children and several grandchildren. Because she is too young to receive a government “old-age” pension from her own country, and none of her children or grandchildren receive social grants, the family must make its own way by working the fields. She works in her neighbor’s fields for money or food, while her children and grandchildren work their own omahangu (millet, Namibia’s staple grain crop) fields.

 

What do you need to know about HIV/AIDS?

 
 


Know your own HIV status.

Globally, 90 percent of people who are HIV-positive do not know that they've been infected. Find out where to go in your area for HIV counseling and testing, by calling your local health department or the Centers for Disease Control and Prevention, (CDC) National AIDS Hotline, at 1-800-342-AIDS (2437).

Learn how to protect yourself.
HIV is transmitted in four body fluids: blood, breast milk, semen, and vaginal fluids. And there are four ways to contract HIV: unprotected sex, sex (anal, vaginal or oral) without a condom  with an infected person; from a mother to her baby during pregnancy, birth or breastfeeding; by sharing needles, knives or other tools for injections, tattoos, piercing, or traditional scarring; or through blood-to-blood contact. You can also find more information from the CDC Web site or UNAIDS.

 

 

Making it to tomorrow
This family and others like them are all too common in Namibia and throughout southern Africa. Their situation illustrates the devastating impact of AIDS on communities. Parents and young adults, the most productive members of any society, are most likely to be infected by HIV. Nearly one in five Namibians, ages 15 to 49, is HIV-positive, according to UNAIDS. Many times these people are their family’s sole breadwinner, supporting 10 to 15 family members on one salary.

When the HIV-positive breadwinner becomes too ill to work, the person returns home to the village to be cared for by his or her mother or other relatives. The loss of income forces the family to make difficult choices, often selling off its meager assets or taking younger children out of school. Eventually, the sick person dies, but not before the family’s assets are exhausted.

AIDS breaks down the social structures that have been used to pass on skills and a sense of identity from parents to children, further weakening the society’s ability to withstand such an onslaught. How does one person offer her children and grandchildren hope to dream about the future when she spends all of her energy securing enough food to make it to the next day?

We are all living with HIV/AIDS
AIDS is not just a problem for Africa and the developing world. It is everyone’s problem. After more than a decade of stable or declining rates of new infections, HIV in the United States has begun to increase again, in what UNAIDS has described as a “resurgent epidemic.” Today, more than 1.2 million people in the U.S. are living with HIV.

 


AIDS Today: The global picture

Worldwide, at the end of 2005:

People living with HIV: 38.6 million
New HIV infections: 4.1 million
AIDS-related deaths: 2.8 million

Sub-Saharan Africa is home to 10 percent of the world’s population, but has nearly 64 percent of the world’s people living with HIV —- 24.5 million.

Three-quarters of all women living with HIV globally are in sub-Saharan Africa.

In this region, about one in six
(17 percent) of the 4.7 million people who need antiretroviral treatment (ARV, anti-AIDS drugs) are receiving it. In contrast, more than 70 percent of people living with HIV in the United States are on ARV treatment.

AIDS orphans worldwide: 15 million

AIDS orphans in sub-Saharan Africa: 12 million

Namibia, end of 2005:
HIV infection rate in adults ages 15-49: 19.6 percent

UNAIDS Report on the Global Epidemic, May 2006.
 

 

Most American women who have HIV are infected during sex, and the biggest danger for women is their male sexual partners’ high-risk behavior (for example, injecting drugs, exchanging sex for money, or having sex with other men). According to UNAIDS, 2006 Report on the Global AIDS epidemic, 50 percent of new HIV infections diagnosed are among African Americans, who make up 12 percent of the U.S. population. And 18 percent of newly diagnosed infections are found in Hispanics, who are 14 percent of the U.S. population.

The combination of race and gender is deadly. “African American women are up to a dozen times more likely to be infected with HIV than their White counterparts. AIDS is the leading cause of death among African American women aged 25-34 years and ranks in the top three causes of death for African American men aged 25-34 years." (UNAIDS) Treatment rates are also much lower among African Americans than for Whites.

Do Justice

I believe that AIDS is fundamentally a justice issue. Where one is born, the color of one’s skin, or the amount of money she has should not determine how she dies — yet in our world and our own country, this continues to be the case. People in Europe and North America had access to life-prolonging antiretroviral medications nearly eight years sooner than those in developing countries; the result is that nearly 12 million of the 15 million AIDS orphans worldwide live in sub-Saharan Africa, many with stories like those I shared. And HIV infection is still a reason for denying visa applications to the United States and other countries. As people of faith, we are called to “do justice, love mercy, and walk humbly with our God” (Micah 6:8). Yet all too often, we have remained silent on this issue. And people are dying because of it.

I am part of the first AIDS generation. Will our children be the last? Or their children? How many generations will follow before an effective cure is found for HIV, and the virus can no longer ravage our world? And what are we — you, me, us — doing to bring that day closer?

Maryn Olson earned a B.A. in political science and humanities from Valparaiso University. Since November 2003, she has served through the ELCA’s Global Mission with HIV/AIDS programs of partner Lutheran churches in southern Africa. Currently, she is serving as the resource person for Evangelical Lutheran Church in Namibia AIDS Action.

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Faith Reflections
by the Rev. Kaari Reierson

Are any among you suffering? They should pray. Are any cheerful? They should sing songs of praise. Are any among you sick? They should call for the elders of the church and have them pray over them, anointing them with oil in the name of the Lord. The prayer of faith will save the sick, and the Lord will raise them up; and anyone who has committed sins will be forgiven.
James 5: 13 – 15


I have a friend who was diagnosed recently with AIDS. It took a long, long time for our medical system to figure it out. Perhaps they didn’t guess for so long because in the minds of the doctors, he didn’t fit the profile in the United States — he had emigrated from Africa. But in Africa, everybody fits the profile.

It’s an incredibly sad story. His family is not here to mourn with him or to comfort him or to tend him in his illness. He had to advise his American ex-wife to get tested. She doesn’t have health insurance. She also bears the burden of a lot of extended family who depend on her financial support.

What makes the story even more agonizing, to me, is how few people he was able to tell about his diagnosis. He told a few of his closest confidantes, but his coworkers think he has an intestinal ailment. Ironically,
I think his coworkers would be far less shocked and far more supportive than he could anticipate.

Perhaps in time he will find that he has to tell people. Certainly as he begins treatment he will need support and understanding.

It’s pretty difficult to manage AIDS in secret. Perhaps once he does he will find more welcome among his coworkers than he would have thought possible. But for right now, he suffers mostly alone, working to hide the medical diagnosis with a series of pretenses. He is being driven and controlled by shame to shut out the very people who could offer comfort.

If only. If only it wasn’t AIDS. If only he wasn’t from a place where even though one in five children is orphaned by AIDS, people only die of “pneumonia.” If only he could tell just a few more people and realize how he has been cutting himself off from the human company he will need.

If only he had a community here like the community described in the verses of James.

That community shares joys and sorrows. There are no secret diseases because sorrows are the business of everyone.

Remember that when James was written, physical illness was thought to be an outward sign of inward moral illness. Those who are sick are not told to hide their illness so that they don’t corrupt their fellow Christians.

On the contrary, sick folks are empowered in this letter to call upon their congregations to come and pray over them. They are not supposed to go to church but pretend everything is fine. They are not supposed to sit at home and wait until someone notices how many worship services they have missed. They’re not supposed to be meek and patient and hope for a convenient moment for a member of the church to come visit. They’re supposed to call up the leaders of the church and ask for the prayer of the community.

It seems to me that one of the worst things that AIDS can do, if we allow it, is rob the person suffering from it from a healing community.

I don’t mean the curing community, the medical professionals who are there to see to the physical wellbeing of a patient. They’re supposed to be impassive, and refrain from passing judgment, at least in public. I mean the healing community, the people who knew sufferers when they were physically whole, and who will stay close at hand during the illness to pray and comfort, to weep and eventually to celebrate a resurrection. We have added a tragic dimension to AIDS any time we feed the kind of shame that drives people to pretend.

What sound advice from the writer of James. This is a person who understands suffering who understands how much we need each other when we are suffering, and who knows how much more intensely we need to feel the love of God when we are ill.

These are the people interested in the spiritual welfare of their fellow believers, in their relationships with God. If we suffer condemnation from our fellow believers who are there to pray for us, illness and all, our connection to God suffers. Oh, that the church may be that community, where all of our members can call upon us to pray!

Without a doubt we are called by Christ into ministering to the sick, even — no, especially —those who suffer from diseases which bear a social stigma. In Matthew 25, when the righteous are confronted by their error, they are amazed to find that they weren’t supposed to be as selective in their ministry as they thought. I guess that means we aren’t supposed to be either.

Then they also will answer, 'Lord, when was it that we saw you hungry or thirsty or a stranger or naked or sick or in prison, and did not take care of you? Then he will answer them, 'Truly I tell you, just as you did not do it to one of the least of these, you did not do it to me.' Matthew 25: 44 – 45

In our communities, James calls us not to keep secrets. In the wider world, Jesus calls us to tend to the sick as a sign of his presence. Considering what we know about the company he chose to keep, it seems clear to me that the presence of the church belongs with those who dare not even speak the name of their illness aloud.

The Rev. Kaari Reierson is the
Associate Director for Studies, Church in Society, ELCA. She is also the editor for the
Journal of Lutheran Ethics.

 
©  2006 Women of the ELCA. All rights reserved.